Supporting a Loved One with a Long-Term Disability or Terminal Illness
  • Assign one main coordinator to reduce confusion.
  • Organize meals using a shared calendar.
  • Create a transportation schedule for medical appointments.
  • Rotate childcare support if children are involved.
  • Assist with household tasks such as laundry, cleaning, and yard care.
  • Track expenses in a simple spreadsheet.
  • Review insurance coverage and available benefits.
  • Contact a hospital social worker for financial assistance options.
  • List fixed monthly expenses.
  • Identify temporary income supports or government benefits.
  • Ask employers about sick leave or disability coverage.
  • Coordinate direct donations through e-transfer if needed.
  • Document all incoming and outgoing funds clearly.
  • Schedule regular check-ins led by one designated person.
  • Create a private space for friends to share messages and photos.
  • Encourage gentle social visits based on the person’s energy level.
  • Offer respite care for primary caregivers.
  • Organize small gatherings focused on connection rather than fundraising.
  • Fundraising and logistics must be handled by others.
  • Give them control over what is shared publicly.
  • Record conversations about life experiences and values.

  • Invite written memories from friends and family.

  • Organize and label digital photos.

  • Write letters for future milestones if the person wishes.

  • Create a secure digital archive for family access.
  • Compile medical documents in one folder.
  • Maintain an updated medication list.
  • List key contacts including doctors and legal advisors.
  • Review powers of attorney and wills where appropriate.
  • Store important documents in a secure, known location.